International
International Rett Syndrome foundation
Rare Diseases Clinical Research Network
Europe
Swedish National Center for Rett syndrome & related disorders (Sweden)
Hungarian Rett Syndrome Foundation (Hungary)
Ritka és Veleszületett Rendellenességgel élők Országos Szövetsége (Hungary)
America
National Organization for Rare Disorders (USA)
Children’s Hospital at Montefiore (CHAM) is the Center for Rett Syndrome (USA)
Ontario Rett Syndrome Association