Reference:
R000238229
Abstract:
Rett syndrome is a developmental disorder, almost exclusively affecting girls, which goes undetected in early infancy until a dramatic regression in development around 9-12 months. Although Rett syndrome is present from birth early signs of the disorder are difficult to detect. Family home videos, taken before the childﾒs problems were recognised, offer an objective source of data for detecting onset signs prior to regression and for identifying appropriate methods of early developmental support. To achieve these objectives, home videos of 50 pre-regression infants and 20 non-disabled infants will be microanalysed using coding of movements and behaviours developed in pilot work. Further developments will be made to this schedule in the first phase of the research, allowing events on the video recordings to shape the coding. Additional information will be collected by subjecting a randomly selected sub-sample of videos from both groups of infants to the scrutiny of 15 health visitors and 15 midwives – professions closely involved in monitoring early infant development. It is hoped that their observations will help to shed light on whether there are aberrant pre-regression actions and behaviours that can be reliably detected by the naked expert eye, with or without the help of video technology
PROJECT DETAILS
beginning: 1999.
end: 2001.
Country of research: United Kingdom
Counry of funding source: United Kingdom
Funding organization: Economic and Social Research Council Shaping Society
Financing: NATIONAL FUNDINGS – 0 €