The overall goal of our research is to contribute to the clear understanding of Rett syndrome research funding in the member states of the European Union.
Although rare disease research has a high priority in the European Union as well as worldwide, we know very little about how much is actually spent on rare diseases and what topics are really supported. Health research funding comes from three major sources: public sector funding, non-profit funding of the private sector and for-profit funding of the private sector. We have performed an analysis through a case study of Rett syndrome, in order to better understand research funding by public and non-profit funding of the private sector in the European Union. You can browse several items of projects including projects’ title and abstract, research goals (given by the ORPHANET), broader research categories (basic vs. applied research), countries and time frame of research, and name of the funders. You can also search for keywords.
Additionally, an analysis of research output from these projects has been carried out by examining the publications and patents that are linked to these projects.
Please keep in mind that our database is still under development.
If you need further information please do not hesitate to contact me:
Orsolya Varga MD. PhD
messages: varga.orsolya at med.unideb.hu
This research was supported by the European Union and the State of Hungary, co-financed by the European Social Fund in the framework of TÁMOP-4.2.4.A/ 2-11/1-2012-0001 ‘National Excellence Program’.